About the Nordic CHARGE NetworkEstablished in 2002, The Nordic Network on CHARGE syndrome has more than 20 years of experience in networking across the Nordic region. Limited knowledge about CHARGE syndrome in various professional environments and among parents affects individuals living with the syndrome. By focusing on educational, and behavioural aspects, as well as the psychological consequences of CHARGE syndrome, the participants in the network strive to increase knowledge and understanding. The opportunity to meet professionals from other Nordic countries has made a significant difference so far. The network has shared experiences, supported each other in forming national networks and projects, and found ways to apply the knowledge in the daily practices. The network produces information and spreads knowledge about CHARGE syndrome to families and professionals in the Nordic countries. We also collaborate with European networks, Deafblind International (DbI), and other international networks when relevant. |