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About this publication

Re-CHARGE 
Voices about living with CHARGE syndrome 
ISBN: 978-91-89787-04-9 
DOI: 10.52746/DVEZ7239 
Published by 
Nordic Welfare Centre 
© April 2024 
For this publication, we have followed the ethical guidelines of the Nordic Welfare Centre (NWC). 
Authors:
Susanne Jensen, Centre for sensory impairment, Denmark 
Annette Sølgaard, Institute for vision, hearing and deafblindness, Denmark 
Jette Nørgaard, Residential living for adults with deafblindness, Denmark 
Ásta Björnsdóttir, the National Institute for the blind, visually impaired and deafblind in Iceland
Lilja Þórhallsdóttir, the National Institute for the blind, visually impaired and deafblind in Iceland 
Frida Racksäter Nerback, Mo Gård, Sweden
Editors:
Ulrica Ravinale, SPSM, Sweden
Göran Andreas Gregor Caspian Forsgren, Nordic Welfare Centre
Christina Lindström, Nordic Welfare Centre
Text editing:
Maria Rodikova/Proidea.
Publisher: Eva Franzén
Grafisk formgivning: ETC Kommunikation
Photos: Mostphotos 
The pictures in this publication do not feature the interviewed individuals. 
 
Nordic Welfare Centre 
Box 1073, SE-101 39 Stockholm 
Visiting address: Svensksundsvägen 11A 
Telephone: +46 8 545 536 00 
 
Nordic Welfare Centre 
c/o Folkhälsan 
Topeliuksenkatu 20 
FI-00250 Helsinki 
Telephone: +358 20 741 08 80